JACKSONVILLE, Fla. -- Mornings are the most difficult for Paul and Alison Frase.
For the first time in 16 years, the sounds they would listen so intently for, are gone. "No matter what the noise level was in this house, I could hear him," Alison Frase said.
Their son, Joshua Frase, died effortlessly on Christmas Eve in his sleep, when his heart simply stopped beating. But this isn't a story of a young man who died. It's the story of one who lived.
"Fifteen years of life overcoming obstacle after obstacle after obstacle," Alison Frase said.
When Joshua was 11 months old, he already had beaten the odds. "At delivery, he was just gone and they told me he would not survive the day," she said.
But he did, and at 3 and a half months was finally diagnosed with myotubular myopathy, a severe muscle disorder with only 50 known cases around the world.